Landen's Story


​Landen was a little boy that battled a rare disorder- DNA Ligase IV Deficiency. This disorder resulted in small stature (Primordial Dwarfism) and immune deficiency which led to Landen needing a bone marrow transplant in 2017. After his transplant, many complications arose that eventually led to multiple organ failure. Landen passed away September 13, 2019.
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During his short nine years, Landen impacted hundreds of thousands around the world. His personality would light up any room he was in. He was so full of life and energy! At times it was hard to keep up with him! He never met a stranger and loved to make conversation. Helping others was something he loved to do. When Landen was in the hospital a few weeks before his passing, he knew his good friend (Ms. Lois) was going to be having heart surgery. He started talking about things he wanted to do for her while she was in the hospital. Landen never got to do those things, but his Nana was sure to fulfill what Landen wanted to do for Ms. Lois.
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Most importantly, Landen was a little boy who possessed strong faith in the Lord Jesus Christ. When he was five years old, he decided to repent of his sin and follow Jesus with his life. Today, he is completely healed and in the presence of the Lord who he served faithfully in his short life.

About the Foundation


​The Landen’s Story Foundation will work locally with the Levine Children’s Hospital and will have three primary goals: to be a blessing to families who have experienced the passing of a child, to be a blessing to families who have a child with a rare diagnosis, and to share faith and hope with families who are enduring the most difficult seasons of their lives.

How You Can Help


​We need help as we seek to help many families who are hurting. How can you help? First, please pray for this foundation that God would use it for His glory. Second, please give a donation. If you would like to donate- please make donations out to the Landen’s Story Foundation, PO Box 1733 Lincolnton, NC 28093 or you can donate online by clicking the donate button below.
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Together, we can help bring hope to children battling rare illnesses and families who have experienced the pain of a child passing away.​